A charitable organization that lives its values of accountability, collaboration, compassion, integrity, resiliency and respect, ALS Canada works with the ALS community to improve the lives of people affected by amyotrophic lateral sclerosis through support, advocacy and investment in research for a future without ALS. Fully funded by donors, we were fortunate to benefit from the generosity of Canadians during the ice bucket challenge of 2014, and are now focused on implementing our 2018-2023 strategic plan in support of the following long-term impacts:
- people affected by ALS receive the best possible standard of care;
- more treatments are available to improve quality of life and extend lifespan;
- people are empowered to make informed decisions about ALS.
Our world is challenging. The people we serve are dealing with a devastating illness. But in the midst of it, their resiliency and spirit is remarkable and moving. You will be touched by the community and will find a way to naturally and effectively engage.
We are currently recruiting for a Regional Manager for the Champlain region. This is a permanent, full-time position.
Reporting to the Senior Regional Manager, the Regional Manager, Champlain will work with stakeholders in the ALS community including clients, families, ALS clinics, LHINs, healthcare providers, community agencies and partners and volunteers to provide support services for clients with ALS and their families, helping them navigate the health care system. They will also be responsible for creating and supporting opportunities for awareness, advocacy and fund development.
Services and Support
- Manage a client caseload by establishing regular communication (through client contact such as home visits, email, phone contact, etc.) with clients with ALS and their families to provide support and help them navigate the healthcare system.
- Connect with new clients within 10 business days of registration
- Identify issues, manage information as well as provide non-clinical support to clients and families - disease facts, coping strategies, identification of resources and community events
- Support the equipment program process by acting as a liaison between occupational therapists, families, clients with ALS and the ALS Canada equipment team
- Facilitate and enable support and/or bereavement programs and/or make referrals to community support/bereavement programs as needed
- Liaise with health care and social services professionals to support client care
Advocacy & Awareness
- Provide ALS education to healthcare providers, community agencies, service clubs, students, families and the public as requested; organize educational opportunities with vendors and suppliers and relevant partner agencies e.g. hospice
- Organize and participate in local and provincial advocacy efforts by attending and speaking at events as required
- Develop partnerships and relationships with local health care professionals and social services
- Collaborate with the public affairs and communications team in liaising and developing relationships with print, radio, TV media
- Act as a representative of ALS Canada within the region including community events, media interviews, speaking engagements and presentations
- Attend government meetings in relation to provincial advocacy efforts on behalf of ALS Canada
- Develop and support the local walk to end ALS working with volunteer committees and collaborating with walk to end ALS coordinators to implement walks within the region, drive recruitment and training for walk committees and volunteers, manage all planning, budgeting and purchasing, sponsorship, relationships, promotion and media during walk preparations and evaluation
- Meet or exceed overall event revenue targets for local walks
- Participate in walk to end ALS training
- Work closely with the senior manager, community engagement and events team to identify potential donors and relationships that will enhance regional activities
- Participate in and/or develop fund development community events in the region as required, attend events as an ambassador of ALS Canada as required
- Travel based on client meetings and organizational requirements; valid driver’s licence and access to a vehicle with appropriate insurance are required
- Flexibility to work some evenings and weekends and occasional overnight stays
- Home office required
Submit a cover letter and resume in PDF. Please be sure to indicate the job title in the email subject. Applications will be reviewed on an ongoing basis until the position is filled.
ALS Canada would like to thank all applicants for their interest; however, only those selected for an interview will be contacted.
ALS Canada is committed to accommodating the individual needs of job candidates, in accordance with the Accessibility for Ontarians with Disabilities Act (AODA), ALS Canada is committed to accommodating applicants with disabilities within our recruitment processes. Please contact the human resources department at firstname.lastname@example.org if you require an accommodation during the recruitment process. ALS Canada is committed to being an equitable employer, we strongly encourage people from equity-seeking groups to apply.